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| Hannah Montana? Is that you? |
Home again, home again. WE ARE DONE WITH CHEMO! Chemotherapy treatment number 7 was decided against for a number of reasons, and we couldn't be happier that Hayden is beginning her slow recovery process at home.
Hayden has been home for 5 days, and as most girls, made it clear how much she missed "dressing up" in her clothes by trying on that many outfits PER day! Every time she went into her room, it seemed she emerged with an new look. It's quite possible that spending 36 days in one's pajamas can have a lasting effect on a girl's sense of style, and she wanted to make sure she had not lost hers!
One of the things she has truly missed is playing with her dog, Lucy. They are very close, and I think in many ways Lucy understands things about Hayden that we can only try to. One thing that she hasn't missed, and that seems to be the biggest hurdle these days is EATING. She is still sporting her feeding tube, and is struggling to drink or eat anything by mouth. We are working hard at overcoming this as it is a huge obstacle to conquer. She has always been a "picky" eater, but this is extreme, even for her. She has said numerous times that when she does start eating she would like a bacon, cheese and ketchup sandwich. Not my first choice, but if that is what she wants, then that is definitely what she is going to get! At this point we would be happy if she would eat the bacon, cheese OR ketchup!
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| Time to pick up big bro at school! |
Surprisingly, it has been an adjustment to not have the hospital as part of our daily lives. As strange as it seems, it became a habit to factor in "hospital time" into daily life. I have caught myself planning out my day with the hospital visit time in mind, before I remember that she is no longer there. It is a phenomenon that I am not anxious to repeat. I would be happy to never have that as part of my life again!
Here's hoping that activity #29 is all about EATING!
