Activity #15

If the worst of the worst, happens to the best of the best, then we should have seen this one coming---like a freight train. There is no other way to put it, no sugar coating, no politically correct grammar to hide behind. Hayden has cancer. The surgery to remove the tumor that grew back in her chest, once benign, is now NOT! I think that someone who has as many challenges as she has had, should be able to pull a trump card on something like this. Don't you? I mean, is it at all fair that she thinks that the surgery was the worst of it, and she still has such a long road to haul? I don't. Can I call "sub", God? Put me in. I'll play this hand for her. Please?! If I would, please understand that I would do it in a flat second. Not to be a heroin, but because it would be fair.

So, every moment, every day is to be even more appreciated and valued now. Opportunities are not to pass us by. Time to be spent together should be spent together. So... today, I called her and asked if she wanted to run and errand with me. Of course, that was all the motivation that she needed to get in the bathtub and get her hair washed (much to her mother's relief). I arrived to her house to find her squeaky clean, getting her hair done by her mom, and expecting a lunch date as well.

On the way, we sang, we talked, and we laughed. Towards the end of the trip, I told  her that I really missed my mom and that I was very sad last night. With all of the wisdom and innocence that is hers, she told me to ask God to let my mom come back from dying. I explained to her that God wouldn't do that, and she said that she didn't want to die, but if she did, she wouldn't have Down Syndrome anymore. The wisdom of a babe. In heaven we are all "perfect".  I asked her how she felt about that, and she said "good". We both understood what she meant.

Challenges. They are the story of her life. She looks different, she talks different, she walks different, she thinks different, and man oh man, does she LOVE different. And for that love, I would walk a million miles.A pure, simple, unfiltered and unexplainable love that you could ever be so blessed to receive. That is what you get from our girl. So I pray. Please God, let her always have Down Syndrome. Not because I want her to have challenges on this earth, but because she is already perfect, and I think You will survive without her. I cannot say the same thing about the ones she loves so perfectly. Amen.